Beginning in 2014, and going forward, we will be donating a large portion of the proceeds from the annual DAM Golf Tournament in Devon's name to the Pulmonary Fibrosis Research Fund at Johns Hopkins. Pulmonary Fibrosis is an orphan disease (a disease that does not get a lot of publicity or funding as it does not attack as many people as, say, breast cancer). This makes each one of your dollars that much more important in helping find treatments that would have allowed Dev to live longer than his very brief 23 years, with his desired quality of life. For Dev, that would have meant continuing to carry his clubs 18 holes, skiing, traveling, ... living his beautiful life fully.
From Johns Hopkins: “Funds raised for the Pulmonary Fibrosis Research Fund at the Johns Hopkins Division of Pulmonary and Critical Care Medicine will be used to advance research efforts to identify treatments to alleviate suffering and ultimately find a cure for pulmonary fibrosis.”
Dr. Sonye Danoff, co-director of ILD (Interstitial Lung Disease) at Johns Hopkins and one of the primary physicians in Pulmonary Fibrosis research, was Devon’s lead pulmonologist throughout his disease and treatment. This is a quote from Dr. Danoff speaking about Dev, "He was a truly remarkable young man and his memory remains with me as a catalyst to continue pushing forward in our ILD research.”